Timmy’s Story – the Connecticut boy who can’t eat food

Posted by admin on June 20, 2010 under allergy | 10 Comments to Read


Story of my son and how he lives with Eosinophlic Enteropathy! This disase has removed all foods from his diet! For more info on this disease and how you can help, visit: www.CUREDfoundation.org

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  • 69Emohazard69 said,

    My baby brother has EE.. He is deathly allergic to peanuts, eggs, dairy, and he cant eat any other food. He has to eat his food from a feeding tube, and it’s only formula.. We give him ice cubes to eat when he wants a snack.. :(

  • SharingMyStory said,

    This situation is so similar to my son – he is almost 8 yrs old and has EE and a G-tube. In general he has a great attitude – just like Timmy – but there are days that he’s really down. Playing ice hockey has been his saving grace as it is something he loves and it helps keep his mind off food.

    ‘ll keep your family in my prayers.

  • machado231097 said,

    poor kid :’(

  • 0869dancer said,

    my little boy cannot eat either and he has only ice and neocate he is 5 and we live in britain he has never eaten and is diagnosed with Eosinphillic mucosol diseaes god bless you lad and keep him safe

  • vairaBerlin said,

    This kid is so amazingly strong and mature. All my best wishes honey.

  • emeraldaradia said,

    Wow. Poor kid. :/ I couldn’t imagine having to go through this.

  • MONIQUEIJ said,

    poor kid

  • starcraft2geek123 said,

    i have EE :( im alergic to milk, peanuts, and soy… but wow… compared to him i have it easy. This is realy sad…:( i hope he gets better and can eat again soon. :D

  • sexypurplemoose said,

    brave brave kid. thanks for posting it up. more people should kno

  • bravekid5 said,

    My son also has EE. The Elecare and Neocate formula is corn syrup based. My son is now trying SUSTAIN, a rice based formula.

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